Duchenne muscular dystrophy is the most common, terminal, childhood, genetic illness and at the same time is likely the most misunderstood condition. Recent innovative research has uncovered many mysteries of Duchenne including its etiology, pathophysiology and treatment. It is vital that we have a thorough understanding of the disease and deliver appropriate treatments based on the current evidence. Inadequate understanding of the disease can lead to muscle injury of patients who are already at risk for severe muscle degeneration. This course will explain the incidence, etiology, pathophysiology, progression and the stages of mobility of Duchenne. Therapy treatment, orthopedic management, activity modification and equipment selection will be covered. An update on current research and clinical trials. This course is ideal for PT, PTA, OT, COTA, SLP, PE/APE, RN and others involved in the care of persons with Duchenne.
Lesson 1: Course Introduction
Lesson 2: Duchenne Background
Lesson 3: Dystrophin Protein
Lesson 1: Diagnostic Overview
Lesson 2: Pseudohypertrpohy
Lesson 3: Gower
Lesson 4: Waddling Gait
Lesson 5: Duchenne Jog
Lesson 6: Creatine Kinase
Lesson 7: EMG
Lesson 8: Muscle Biopsy
Lesson 9: Genetic Testing
Knowledge Check 1 (Chapters 1-2)
Lesson 1: Natural Progression
Lesson 2: Mobility Stages Overview
Lesson 3: Early Ambulatory Stage
Lesson 4: Mid-Ambulatory Stage
Lesson 5: Late/Transitioning Stage
Lesson 6: Non-Ambulatory Stage
Lesson 1: Steroids
Lesson 2: Respiratory Intervention
Lesson 3: Nutrition
Lesson 4: Cognitive Involvement
Knowledge Check 2 (Chapters 3-4)
Lesson 1: Subjective Evaluation
Lesson 2: Objective Evaluation
Lesson 1: Contracture Management
Lesson 2: Therapy Strategies
Lesson 3: Orthotic Strategies
Lesson 4: Stander
Lesson 5: Serial Casting
Lesson 6: Orthopedic Consult
Lesson 7: Spinal Therapy Strategies
Lesson 8: Spinal Medical Management
Lesson 1: Guidelines
Lesson 2: Exercise
Lesson 3: Upper Extremity Devices
Lesson 1: Electric Scooter
Lesson 2: Manual Wheelchairs
Lesson 3: Power Wheelchairs
Lesson 4: Custom Seating Systems
Knowledge Check 3 (Chapters 5-8)
Lesson 1: Early Ambulatory Stage
Lesson 2: Mid-Ambulatory Stage
Lesson 3: Late/Transitioning Stage
Lesson 4: Non-Ambulatory Stage
Lesson 1: Referrals and Research Updates
Duchenne Muscular Dystrophy Course Post Test
ABOUT THE INSTRUCTOR
One of the best courses I have been to, comprehensive and applicable to my immediate treatment of the Duchenne population. Good verification, reinforcement and updates to further knowledge and treatment skills.
Working with Duchenne patients is different than other patients you work with as a PT. What is normal for other patients could be detrimental to a Duchenne patient’s health.
The CureDuchenne Cares program exposed me to treatments that were catered directly to patients with Duchenne. This program helped translate our typical physical therapy methods into appropriate and effective treatment...
Through the CureDuchenne Cares program, I learned the importance of listening to my patients just a little bit more. Now I let the child drive the treatment because nobody knows what he’s going through except for him.
Therapists have a tremendous role to play in the optimum clinical management of patients with Duchenne. This can be achieved through continued education and greater participation in organizations such as CureDuchenne Cares,...
The CureDuchenne Cares program is one of the most impactful courses I’ve ever taken,” Dani explains. “This program has empowered me to become the best physical therapist that Duchenne patient – and their family – needs...